Metro DC EDS and HSD Support Group is open to people with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) in Northern Virginia, suburban Maryland, and Washington, DC as well as to their family, friends, caregivers, and practitioners.  We also welcome people from the broader DMV area and have members from Baltimore to Richmond to Winchester.

The group has grown to almost 600 people since its first meeting in January 2013, which had 8 attendees.  Our goal is to encourage ongoing sharing and support among members, learn more about EDS, HSD, and related conditions from each other and medical professionals, and help others better understand EDS and HSD and our lives as “Zebras.”

Since the pandemic we have been having Zoom meetings, which include guest speakers and/or a general discussion.  We will resume our quarterly meetings, which rotate between Washington, DC and Northern Virginia at metro-accessible locations, in 2024.  Meetings will be announced on this site, by email, and on our Facebook page.  Between meetings, we stay connected and engaged through our email list, Facebook, and social gatherings.  To join our email list, please contact us at eds@eds-dc.org.

We are always looking to see new faces!