The group has grown to over 500 people since its first meeting in January 2013, which had 8 attendees. Our goal is to encourage ongoing sharing and support among members, learn more about EDS, HSD, and related conditions from each other and medical professionals, and help others better understand EDS and HSD and our lives as “Zebras.”
Since the pandemic we have been having Zoom meetings, which include guest speakers and/or a general discussion. We will resume our quarterly meetings, which rotate between Washington, DC and Northern Virginia at metro-accessible locations, in late 2023. Meetings will be announced on this site, by email, and on our Facebook page. Between meetings, we stay connected and engaged through our email list, Facebook, and social gatherings. To join our email list, please contact us at firstname.lastname@example.org.
People may also wish to join the Maryland EDS Support Group by contacting MarylandEDS@gmail.com.
We are always looking to see new faces!