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MEDICAL UPDATES AND OTHER NEWS
Search more news on hEDS, POTS, MCAS and more on EDS411
Latest News, Research & Items of Interest
How to Improve the Chances of Getting Useful MCAS Test Results
blog
Low-Dose Naltrexone for Managing Pain and Autonomic Symptoms in Patients With Dysautonomia - PubMed
research
Dysautonomia conference centers biomarkers and post-exertional malaise - The Sick Times
article
Study finds higher allergy rates in children with hypermobile EDS
article
People with hypermobility may be more prone to long Covid, study suggests | Long Covid | The Guardian
article
FDA Approves Novel Non-Opioid Treatment for Moderate to Severe Acute Pain | FDA
article
Epstein-Barr Virus: Genetic Risks, Reactivation, and Chronic Illnesses
article
Clinical Improvement in Postural Orthostatic Tachycardia Syndrome (POTS) Following Prolotherapy and Cervical Curve Correction: 4 Case Series of Patients with Hypermobile Ehlers-Danlos Syndrome (hEDS) and Suspected Cervicovagopathy
research
Exploring the Dynamic Relationship Between Migraine and Functional Neurological Disorders: A Narrative Review | Current Pain and Headache Reports | Springer Nature Link
research
Decompression with or without Duraplasty for Chiari I and Syringomyelia | New England Journal of Medicine
research
Orthostatic Intolerance Testing Made Clear: Tilt Table, Active Stand, and the Passive Stand - Bateman Horne Center
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Inflamed Blood Vessels Appear to be Causing Brain Fog in Long COVID - Health Rising
article
Wegovy Pill Becomes First Oral GLP-1 Weight-Loss Drug Approved in U.S. | Scientific American
news
Pelvic floor disorders in Ehlers Danlos syndrome compared to control population | Discover Medicine
research
Rhematology Look at Comorbidities of Hypermobility - ScienceDirect
research
Mast cell activation syndrome (MCAS) - an overactive immune system
blog
Tips on How to Choose and Pay for In-Home Health Care
article
Cerebrospinal Fluid CSF Leaks in Marfan and Related Conditions - YouTube
video
Understanding Inflammation: Specialized Pro-resolving Mediators (SPMs): The Resolution of Inflammation
resource
Did a Lab Study Just Uncover a Craniocervical Instability Subset in ME/CFS? - Health Rising
blog
Association Between Orthostatic Intolerance Symptoms and Cognitive Complaints in Hypermobile Ehlers-Danlos Syndrome (hEDS) and Joint Hypermobility Spectrum Disorder (JHSD): A Cross-Sectional Analysis
research
What Is Microdosing GLP-1s Like Ozempic? Experts Explain | PS Health
news
The phenotypic and genetic association between endometriosis and immunological diseases - PubMed
research
Seeks Participants: The Impact of Fatigue, Pain, and Sleep Disturbance in People Affected by Dysautonomia | The University of North Carolina at Pembroke
other
Prevalence of Functional GI Diseases and Pelvic Floor Symptoms in Marfan Syndrome and Ehlers-Danlos Syndrome: A National Cohort Study - PubMed
research
Should You Try Melatonin to Help You Sleep? > News > Yale Medicine
article
Clinical Practice Updates: AGA Clinical Practice Update on GI Manifestations and Autonomic or Immune Dysfunction in Hypermobile Ehlers-Danlos Syndrome: Expert Review - ScienceDirect
research
Oral and Maxillofacial clinical features of Ehlers-Danlos syndrome: a systematic review - Oral Surgery, Oral Medicine, Oral Pathology and Oral Radiology
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Pain Points: The myriad miseries of being a patient - Features
article
Immune Dysregulation Could be the Tipping Point for Long COVID - Health Rising
article
“My child needs a chance and a choice to talk about their pain”: Parents’ experiences and perspectives of pain communication in paediatric rheumatology. - ScienceDirect
research
Histamine Intolerance: Understanding Genes, Managing Symptoms
resource
Thoracic Outlet Syndrome (TOS) Commonly Found in ME/CFS and Chronic Fatigue - Health Rising
article
Autonomic and sensory dysfunction in hypermobile Ehlers-Danlos syndrome: How do small fibers contribute? - Autonomic Neuroscience: Basic and Clinical
research
Living With a Rare Disease: How to Develop Self-advocacy Skills
blog
Nutrition and Epigenetics: How Diet Affects Gene Expression – Lifestyle Medicine
article
Years of being misdiagnosed have affected my mental health
article
Frontiers | Association of postural orthostatic tachycardia syndrome, hypermobility spectrum disorders, and mast cell activation syndrome in young patients; prevalence, overlap and response to therapy depends on the definition
research
Inflammation May Be the Link Between Chronic Pain and Depression < Yale School of Medicine
news
Pain Levels and Time of Day
article
Medications to Treat Mast Cell Diseases - TMS - The Mast Cell Disease Society, Inc
resource
Neuroinflammation in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: An 11C-(R)-PK11195 PET Study | Journal of Nuclear Medicine
research
Association of mast-cell-related conditions with hypermobile syndromes: a review of the literature - PMC
research
Ehlers-Danlos Syndrome, Hypermobility, and Mast Cell Activation Syndrome: The Connection - Dr. Tania Dempsey
blog
Decoding the Genetic Basis of Mast Cell Hypersensitivity and Infection Risk in Hypermobile Ehlers-Danlos Syndrome - PubMed
research
Frontiers | Comorbidities and neurosurgical interventions in a cohort with connective tissue disorders
research
Success of POTS Treatment Reduced by Concurrent Anxiety
article
Contradictions in the Criteria for Diagnosing Hypermobile Ehlers–Danlos Syndrome as Reflecting Some of the Philosophical Debates about the Threshold between the Normal and the Pathological | The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine | Oxford Academic
research
Global Genes Guide to Grief - Global Genes
article
Relationship Habits That Are Signs Of ADHD | HuffPost Life
article
Magnesium Powered Bath Soaks – Flewd
product
Your dysautonomia may be caused by Sjogren’s disease. Here’s why that matters. | The Dysautonomia Dispatch
blog
Stress Urinary Incontinence Article
article
Gen Zer With Rare Condition Gets Botox Injected—Then Her Spine Destabilized - Newsweek
news
A retrospective review of psychosocial correlates of chronic pain in cisgender, transgender, and gender-diverse youth receiving evaluation in interdisciplinary pediatric pain clinics - PMC
research
Vascular Ehlers Danlos Syndrome and Chromosome 2q32 Microdeletion Syndrome | European Journal of Human Genetics
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The Complexities of Navigating the Healthcare System as an Autistic Individual with Ehlers-Danlos Syndrome: A Patient Perspective - Sarah Clark, 2025
research
New CCI Research: Understanding the Frequency of Neurosurgical Interventions in Connective Tissue Disorders – EDSAwareness.com - EDSAwareness.com
research
I can’t go everywhere my daughter goes – and it’s heartbreaking | Well actually | The Guardian
article
Exploring fatigue in Marfan and hypermobile Ehlers-Danlos syndromes: an analytical cross-sectional study in two Italian healthcare centres - PubMed
research
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